Canadian Association for Porphyria

Living with Porphyria

What about pregnancy?

The risk of problems arising during pregnancy is also relatively minor and the symptoms can be easily managed. Every patient with porphyria should wear or carry with them some type of identification such as a Medic-Alert bracelet indicating the fact that they may be at risk for porphyria. Rather than concealing the fact, they should also ensure that their close family and friends know about their condition. The individual patient should make a point of becoming as knowledgeable as possible about their disease and their health.


Source: This information originally appeared in a booklet written for the Canadian Porphyria Foundation: A Guide to Porphyria (1991) by Dr. Barry A. Tobe, MD, Ph.D, FRCP(C), Toronto, Ontario, Canada. The content has been updated by Dr. Brian M. Gilfix, MDCM, PhD, FRCPC, DABCC, FACB on 22/03/2015. 

Last Updated: 22/March/2015 

Medical Disclaimer

Care has been taken to ensure that the information on this website is accurate at the time of publication. This information is, however, intended for general guidance only and is not meant to substitute consultation from a recognized health professional. The Canadian Association for Porphyria/Association Canadienne de Porphyrie disclaims for itself and for the author of this information, all responsibility for any mis-statements or for consequences of actions taken by any person while acting on information contained herein. Physicians and patients must make their own decisions about therapy according to the individual circumstances of each case.

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