Canadian Association for Porphyria

American Porphyria Foundation - Safe/Unsafe Drug Database 

http://porphyriafoundation.org/drug-database

The database contains expert assessments of the potential of drugs to provoke attacks of acute porphyria. The database provides guidance based on a very careful evaluation of international clinical experience, published case reports, previously published drug lists, and theoretical considerations. The quality of patient reports used in the assessments is however often unsatisfactory and for most assessments the available clinical evidence is scarce. In addition, the theoretical models for the mechanisms of action of drugs in the porphyria disease are still incomplete.

Report a Bad Reaction

If you have an Acute Porphyria and have had a bad reaction to a Medication please report it to the American Porphyria Foundation by downloading the Safe/Unsafe Drug Questionnaire Form here, fill it out, and send it to the APF at 4915 St. Elmo Avenue, Suite 105, Bethesda, Maryland 20814, or Fax to: 301-312-8713.


 

NAPOS - The Drug Data Base for Acute Porphyria

The Norwegian Porphyria Centre (NAPOS) is responsible for the development of this multi-language drug database.

http://www.drugs-porphyria.org/index.php



Porphyria Drug Safety - Mobile Web APP

Drug safety search for people diagnosed with porphyria.

http://porphyriadrugs.com/

Medical Disclaimer

Care has been taken to ensure that the information on this website is accurate at the time of publication. This information is, however, intended for general guidance only and is not meant to substitute consultation from a recognized health professional. The Canadian Association for Porphyria/Association Canadienne de Porphyrie disclaims for itself and for the author of this information, all responsibility for any mis-statements or for consequences of actions taken by any person while acting on information contained herein. Physicians and patients must make their own decisions about therapy according to the individual circumstances of each case.

Powered by Wild Apricot Membership Software