The Canadian Association for Porphyria was founded in 2014 by a small group of patients, caregivers and their friends to provide Canadians with porphyria-related information, understanding and support.
The current Canadian Association for Porphyria has built upon the legacy of two earlier organizations which served Canadians for more than two decades:
Deliver evidence-based information and support to patients with porphyria, their families, health care providers and the general public across Canada; and
Official Name: Canadian Association for Porphyria/Association Canadienne de Porphyrie
Business Number/Registration Number: 81282 5735 RR0001
Effective Date of Registration: March 6, 2014
Designation: The Charity is designated as a Charitable Organization.