For over twenty years Canadians received information, knowledge, understanding and assistance from the Canadian Porphyria Foundation which became the Canadian Association for Porphyria, Inc. In 2010, the Canadian Association for Porphyria ceased to exist. In order to continue their work, a small group of volunteers created the Alberta Porphyria Society. They also applied to create a national charity once again.
In 2014, the Canadian Association for Porphyria/Association Canadienne de Porphyrie became a registered charity. The Alberta Porphyria Society was dissolved in 2014.
Any links provided to other web sites on this page does not constitute its endorsement or recommendation by the Canadian Association for Porphyria. The links provided on this page are only for your reference to aid you in finding the information you are looking for. The Canadian Association for Porphyria is not responsible for any of the contents within any of the websites referenced on this page.
Care has been taken to ensure that the information on this website is accurate at the time of publication. This information is, however, intended for general guidance only and is not meant to substitute consultation from a recognized health professional. The Canadian Association for Porphyria/Association Canadienne de Porphyrie disclaims for itself and for the author of this information, all responsibility for any mis-statements or for consequences of actions taken by any person while acting on information contained herein. Physicians and patients must make their own decisions about therapy according to the individual circumstances of each case.