Canadian Association for Porphyria

Current Research

How can I participate in porphyria research?

It may be possible for Canadians with porphyria to participate in research and trials in the United States. For more information:

http://www.rarediseasesnetwork.org/porphyrias/studies/index.htm


Medical Disclaimer

Care has been taken to ensure that the information on this website is accurate at the time of publication. This information is, however, intended for general guidance only and is not meant to substitute consultation from a recognized health professional. The Canadian Association for Porphyria/Association Canadienne de Porphyrie disclaims for itself and for the author of this information, all responsibility for any mis-statements or for consequences of actions taken by any person while acting on information contained herein. Physicians and patients must make their own decisions about therapy according to the individual circumstances of each case.

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