Canadian Association for Porphyria

Canadian Stories

Canadians Share Stories of Living with Porphyria


Kelly- Variegate Porphyria

“I thought it would be an easy road to good health now that we could put a name to what I had.” Read more...

Leslie- EPP

"The hardest part about living with EPP is dreaming about all I could do if the sun were not out..." Read more...

Jean-Baptiste- EPP

"When I was a kid, I would have been so happy if at least one person could simply and fully understand me" Read more...

Lois- HCP

“At that time the medical textbooks contained one small paragraph of information on porphyria and that was scary and erroneous.” Read more...

Medical Disclaimer

Care has been taken to ensure that the information on this website is accurate at the time of publication. This information is, however, intended for general guidance only and is not meant to substitute consultation from a recognized health professional. The Canadian Association for Porphyria/Association Canadienne de Porphyrie disclaims for itself and for the author of this information, all responsibility for any mis-statements or for consequences of actions taken by any person while acting on information contained herein. Physicians and patients must make their own decisions about therapy according to the individual circumstances of each case.

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