The mission of the Canadian Association for Porphyria/Association Canadienne de Porphyrie is:
"Patient self-organization is important for both mitigating uncertainty and driving progress toward improved treatments and outcomes for rare diseases."
News and Updates
The Canadian Skin Patient Alliance (CSPA) June 2015 magazine includes an article about Erythropoietic Protoporphyria (EPP) and CAP/ACP is the featured affiliate. We would like to thank the CSPA for their ongoing support!